Monday, February 27, 2012

Crash Dump Curdle

I was surprised when Monica queried me voluntarily about Frank, during Brenda's international incident two weeks ago, surprised that she chose to speak to me on her own, at all, though I'd have to look up the date. If I do not write it down, either online, hard drive, or hard copy, I cannot remember the time frames about these things. I still dislike Monica, in the sense that white attendant reactionism to me, or paternalism, as with the-Susan-who-treats-Sherry-like-a-large-toddler, and that wasn't going to work with me, is about equal to the African dysfunctionalism in this system that has so scarred my psyche. If any of you read a future byline which indicates that I have been killed by one of these sterling paraprofessionals, don't be surprised; it happens, and all of Josie Byzek's efforts at chronicle collection, all of New Mobility's educational awareness pieces, do not change the fact that beneath the surface, attendant care can be as abusive as nursing home neglect.

I am not trying to rap Ebert for attempting to bridge the gap with his fans; if he gets a few to turn their civic conscience on, this is not a bad thing, but Roger got old and got sick, and I have been swimming in this cess pool since my sister Michelle's childhood. I remember her institutional environment, remember mine, and by default, my local disability center destroyed my life. I may salvage something, but it is too late for me to go back, absorb Hathaway's stress as Andrea, and climb back up, and even if, when I mail my missive, someone gets me a lawyer, and this lawyer comes up with a tactical approach that works, and Linda is politely retired, and Tom either institutes reforms or moves on, my compensation wouldn't amount to chicken feed, and that is the enormity of injustice.

It took me a  superhuman effort not to hurt myself back in 2000. I could not stand up for myself with EEOC intake personnel while I was decelerating and fighting it at the same time, even with a therapist, and this is the issue about time limits and the law. There is no other support system out there for me. Liberty is it, and they make me sick. My sister doesn't care. To her I am like Sherry, and to be treated like Sherry, and so I shield myself with contempt. My brother cares just enough not to be as callous as Stephanie, but when it comes to educating himself, and being aware, like the advocating author Rachel Simon, he chooses, like my sister, to stay blind, because they have children, and I am a terrifying burden.

Some people reading this may be moved, disabled or not, but do not know what to say or how to help, and I have already had my fill of Josie's compassionate pretensions that possibly cost me a happy memory of fun out on a date, with the anticipation of romance.  I would wipe out the ideology behind the simplicity of independent living as a phrase with my bare hands, if I could, and it would not change a thing.

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