Wednesday, January 13, 2016

Metastisis

The degree of toxic stress I'm shouldering is partly my own intransigence, and perhaps too much so: I can cancel with ATT and get cheaper ISPs, return to a partial supplemental security income, collect the 10 dollars in ETP the state would give me. The resistance doesn't come from libertarian fealty. It is not loyalty to Tony which makes me stubborn. Tony came to my twitter feed. I ran him through search, followed him back, and let John Murphy's later rhetorical question slide about what I "heard." Which means I was nice to Tony's CFO because I value what Tony Stiles represents.

I am torturing myself, to a certain extent, because I still believe I can manage my own affairs better than an income maintenance case manager, still believe I can still sustain employment (although I handled Swarthmore College in such a manner that the interviewer who ignored my questions about clips in email had three lawyers view my profile, Christ) I do intend to get mileage out of that incident as institutional liberal bias, and will hopefully find the right editor, but this is a card close to my chest.

My mother's sister, when she and I talk, says "You cannot work." I'll never accept that, but the system doesn't ease up. It isn't fair that every time I need a new power chair I have to see a primary resident, basically clueless Asian students like Dr. Mann, and then get billed 90 dollars, no closer to an evaluation with a provider who will respect me. Wheelchair users aren't programs. We're Americans, and yet a lobbyist from Jazzy gives a Medicare administrator a good snow job, and suddenly everyone in center city has this generic fuck-witted piece of machinery. It isn't right, and I blame conservatives and progressives. People like myself need the AMA to get the fuck out of our way and streamline things differently. It disgusts me.

I'm on the edge of the tight rope, however, and can't keep this up indefinitely. I did work, all by myself, for five years, and shouldn't be expendable because I'm past 50. I will send Tony a decent photo for my profile after I have change for the laundry. Things are that tight right now. 

Can't stop biology, but I am not going back to anything like the homes I've seen, and that's final.

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