Wednesday, November 13, 2013

Inimitable Autonomies Within a Myeloma

Brown initially shared Garrison's pacificism. As a boy, he'd been so disgusted by what he saw of soldiers during the War of 1812 that he later refused to drill with local militias and paid fines to avoid military service. -- Midnight Rising, kindle edition loc 375

In relation to the ACA, I take a different view. Health care will never be radically equalized; it is impossible to achieve this on a global scale. Access to humane treatment is not entirely beyond scope, but this has regional variability.

I have written that I believe in self worth, and do, but cannot delude myself, on macro scales, that my individual life is valuable. My birth was dangerous and difficult and the fetus was supposed to die, didn't, and when that is the summation of an existence, it alters the viewpoint. Someone like Monica Carr, herself a warped challenge for you not to judge her disapprovingly, as she is not simply heavy, but repulsive, like the teletubbies, of which I've been suspicious since I first laid eyes on them, used to tell me that my reactions were irrational. Mmm. For a happy god-fearing suburbanite who successfully raises her progeny and keeps her partner's testicles in a vise, a desire for a short lifespan might be irrational.

Not for me. Existence, to be precious, needs contingency, and it's okay to be single, if you have sustaining relationships and function around that; during youth, dreams of ambition kept me afloat, but I should have realized as an undergraduate that I was doomed, simply as a matter of policy containment and failed domestication. I am sloppy, cluttered, have Italian sinuses, and when I have not been caged, or made into a Frankenstein facsimile, pedestrian sensibility wants it done as a matter of course, hence the dimmer on empathy for aggressive treatments of complex cancers, or even Dick Cheney's heart disease. Continuous fighting in this sense is the irrationality on a evolutionary scale. We're a complex primate, but possibly not unique, and sustaining each 7.1 billion self interested persons may be beneficial to selfish desire to stick around as long as possible, but not in the best interest of the large egg on which we live. If you are over fifty with a multiple myeloma, all that chemo, all those drugs, may buy you time at the expense of other long term viabilities.

I never believed in my own invincibility, and that is one value the long term disabled community can offer. That I'd rather have euthanasia available as an option is not an easy thing to write, but I write it in terms of my expenditures. I have not raised children. Career has been a lifelong unhappy battle, and because people need to make a living themselves, they get the right to manage how I live, and from here, within how many months, I will be forced, once again, to depend on quasi-asinine nursing care, primarily bed ridden because lifting me off a mattress invites liability. I'd rather go to sleep than spend an excruciating period of time under that duress. Now I have to go work on my 400 word piece of snark. Harrumph.

No comments:

Post a Comment