Sunday, September 8, 2013

Striated Wrists

Depending on which executive branch of government is the prosecuting and pursuant body, I am both not disabled and nursing home eligible. To the DOE my cerebral palsy is essentially meaningless, because I went to university, then maintained gainful employment with my condition, and the department, along with Treasury, has the power to garnish and freeze my bank accounts. One day soon I will reach that particular part of Siberia despite my already stringent poverty level. To the state of Pennsylvania, however, in order to receive services, I have to be classified as a nursing home candidate not cogent enough for self determination, and my Jewish bankruptcy lawyer, who left my bankruptcy status only partially complete, given that I would have been better off now had she negotiated with my DOE creditors, explained that as a matter of adjudication, both claims are valid. I am an institutional candidate who needs primary care and functionally able at the same time, unless I legally change my status. Ed Berkowitz parsed this another way, through sucking me back into the world of mental health services and mental illness self-determination, and this is my reward for opening up to my neighbor. I telephoned him about two hours ago. Mr. Berkowitz and myself are friends no more, though he is free to continue reading if he wishes.

Liberalism. I am 51 years old and only as functional as my power chair and grab bars, a bare minimum of medical technology available, while SEPTA does everything it can to reduce my accessible transport options. The Soloist only glances off this red tape, as it is about the tragedy of potential genius broken, but the Project Share model is even worse than the congregation of follies at disability centers.

Advocate for myself? Oh certainly. Challenge my own competency and surrender so the minorities can earn twelve dollars an hour giving me sponge baths. Perhaps you ought to reread some of my more virulent reactions in this context. Ed, I know you were not thinking about anything in particular in promoting Zach Tollen's *tributes,* but I feel hurt, emotionally wounded without cause, and I may have case managed this man. Lose my email Edward, lose it. We are back to hello and goodbye. The next time Suzanne is flat on her back with a seizure I am not driving to get security's assistance.

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